In our last post we told you that Bowen was having a hard time keeping down solid foods and wasn’t growing as much as we had hoped for. It would be hard for me to believe that your prayers didn’t come through because the next day he started eating carrots and other foods he wouldn’t take down before. We’re still working on his weight and intake, but we’re making progress. As far as his skin tone, we’re still not not sure what to make of it. You can imagine that July 4th felt very patriotic with our red, white and blue child. Alright, maybe I shouldn’t joke about it, but we think he’s going to be ok. It doesn’t seem like his doctors are too concerned about it at this point, but we’d value your continued prayers.
Last summer Sarah and I stood on faith and when we gave our son a name that meant “small victorious one.” We’ve been believing ever since that no matter how long it lasts, Bowen’s life will serve a purpose far greater than we could imagine. Sometimes I look back in disbelief on the past ten months of our lives, because it doesn’t seem like there’s been enough time to account for all the great things that have happened since Bowen’s little heart started beating in our world. Somewhere between the four months we spent in the hospital and our responsibilities at home and on the road, a community has been built here at the blog, an ABC World News story has aired, the album Every Falling Tear has been completed, a children’s picture book has been put into motion (more on this coming soon), and the Whole Hearts Foundation has become a reality.
Because of all that has come into motion in a short amount of time, we have to make a real priority of slowing down and spending quality time as family. We are learning to take advantage of all the help we can get. There’s yet another opportunity before us, and it’s something that would be impossible to accomplish without your help.
Here’s the deal. Whole Hearts Foundation is in the running for a $50,000 grant from Pepsi, but we need your votes daily to win. We are currently ranked #56 and will not win the grant without you, your friends, your family, and maybe even your pets if they have a Facebook page. Just kidding about the pets, I don’t want to get disqualified;). I’ve seen the impact of you rallying around us before, and I’m excited to rally together for the sake of the families that Whole Hearts Foundation will help for decades to come. You in?
YOU CAN VOTE EVERY DAY this month, and here’s how!
1. Go to www.refresheverything.com/wholehearts and click “Vote for this idea” once a day. You can also get there by clicking on the banner in the sidebar of Bowensheart.com.
2. Text 107706 to 73774 once a day. (standards rates apply, but there is no extra charge)
3. Look for “Power Votes” on Pepsi products and go back to our voting page to cash them in.
4. Utilize the social networking tools/buttons at the voting page which can help you tweet about it, post the info on your Facebook page and even embed our voting widget on your site or page.
5. Spread the word!
Together, we can do this!



Jenn
July 11, 2011 at 3:42 pm
I have been voting & sharing. I know that money would go a long way and be put to good use. I have spent the last 8 years working for and with non-profits, so I know how precious those dollars are!
I am so happy to hear the Bowen began eating better. As for his color, I think you have to laugh every now and then. We had a whole array of nicknames for Charlotte; blueberry pancake, blue gill, bluebird, blue bell, etc…
Matt Hammitt
July 11, 2011 at 4:08 pm
Thanks Jenn! On top of the nicknames, I loved Pink Week. Down the road, we might need to talk about making something bigger out of that.
Jean
July 11, 2011 at 9:57 pm
I liked Pink Week too. Made me remember to pray for Charlotte every day leading up to that surgery.
Jenn
July 12, 2011 at 1:59 pm
I would love that. Thanks!
Micah Peacock
July 11, 2011 at 3:50 pm
I predict Whole Hearts will get the grant : ) I’m gonna help make it happen : )
Bunches of Love and Prayers,
Micah
Matt Hammitt
July 11, 2011 at 4:09 pm
Micah, you’re a rockstar to us!
Micah Peacock
July 11, 2011 at 4:13 pm
: ) Aww thanks, ha. You are quite literally a rockstar to me ; )
Michelle Oakes
July 12, 2011 at 12:30 am
I agree, Matt…Micah is most definitely a rockstar!
She is an awesome “auntie” to my boys and has been a great friend to me.
I have also been voting and praying for your family, so glad that Bowen is doing so well! (((HUGS)))
Alyssa
July 11, 2011 at 3:59 pm
I’m in!! So glad to hear Bowen is eating more…I love hearing about answered prayers:)
In His Grip,
Alyssa
Matt Hammitt
July 11, 2011 at 4:09 pm
Thanks Alyssa
Alyssa
July 11, 2011 at 5:10 pm
It’s my pleasure:)
Millie
July 11, 2011 at 4:25 pm
I’m voting! In honor of my son Colin who is post Fontan, and for Bowen too.
Susanna
July 11, 2011 at 4:28 pm
Oh this is so cool Matt!! Bowen is so adorable. I pray for him every day. I had a heart condition that required surgery when I was born too. It wasn’t as serious as Bowens but things could still happen if I do something wrong. I voted for it too. I’ll keep praying for you and your family. God bless!
Love
Susanna =)
Karen Rader (Dayspring)
July 11, 2011 at 4:34 pm
Been voting daily! Today posted the links on my Facebook – hopefully we’ll get some more daily voters for you!
Anna
July 11, 2011 at 4:35 pm
I am now voting for this too! I have heard your story on Air 1 before, and this is the first time I have wondered onto your blog, Bowen is so adorable! I’ll be sure to pass along the voting to family and friends as well
Marija
July 11, 2011 at 4:36 pm
I’m voting every day! I also sent out an e-mail to all of my friends telling them about Bowen and Whole Hearts.
I’m so glad that Bowen is eating better! My family is praying for Bowen and your family every day.
God Bless,
Marija
Matt Hammitt
July 11, 2011 at 4:43 pm
We moved up 4 Spaces to #54 in a matter of an hour after posting this! I know we can get this grant with your help. Thanks for the votes!
Sara Hays
July 11, 2011 at 4:49 pm
I’m reposting on my fb page and helping spread the word! God can use Whole Hearts like none of us can even imagine!
So happy to hear Bowen is eating better. My son, Jaxon, had severe GERD (acid reflux) horribly after his second surgery. The dr’s credited it to during surgery, all the muscles get moved and irritated. For one month, he threw up (projectile) at least once a day. We carried beach towels and changes of clothes for everyone everywhere we went. He was on prevacid for awhile, but was eventually taken off after probably 6 or 7 months. I think his esophagus just needed time to heal
As for color….yeah, it’s sometimes hard to believe they are okay when they don’t totally look it. I remember going to Wal-mart and it was freezing in there and Jaxon’s lips & nails were very, very blue. I got questioned by the cashier as to if he was alright
You guys have done fabulous so far and before you know it, Bowen will power through his 3rd surgery and you look back and marvel at how God brought you through something you never thought possible. Jaxon is now 6, plays baseball, loves basketball and playing the drums. God is so, so, so awesome!
Love,
Sara Hays
Tamara
July 11, 2011 at 5:11 pm
Just voted:) Love the idea, especially since I know what its like to have a child with a heart defect. My Sophia was born with TOF and had open heart at 6months. Hope this wins!
Nikki Collins
July 11, 2011 at 5:47 pm
Just wanted to let you know I have voted&shared the link & will continue to. Babies born with heart defects & especially Hlhs are very near & dear to my heart. I had a son born with Hlhs and he passed away when he was 13 days old. So what you are doing is absolutly amazing to me. Heart hugs.
Krista
July 11, 2011 at 5:58 pm
Voting, Voting, Voting!!
I always called Annabelle my little smurf!!!
But my little smurf is now my PINK PRINCESS with her new heart! Her birthday is next week… guess what kind of birthday we are having?
Of course… a pink princess one!!!
LOVE my pink baby…. but I still loved her just as much when she was my smurf!!!!!
Karen Winters
July 12, 2011 at 9:36 pm
She is a beautiful little Princess!
mallory Fields
July 11, 2011 at 6:15 pm
Matt and Sarah
It really means so much to me knowing that you all as a family really care about the needs of other heart families that are living the same life as you all as well as Bowen. For me being a (HLHS) young adult, your termendous loving care lets me know everyday that some heart family is thinking and praying for me and especially for their own heart child. My whole family and I are going to e-mail this to our friends and family members, as well as putting it on our Facebook pages, and for me putting it on my Twitter page as well. Bowen and I both have come a long long long way through out all the surgeries we have been through in Michigan there is no other hospital in the world for open heart surgerys than Mott Children’s Hospital C.S. I wish you all good luck and the very best support with the foundation that you all as a family and parents are doing to let people who dont have a heart condition know that it is a serious health medical condition that you have to stay on track with all the time and the rest of your life it is not a joke, or a lie, it is real and serious at the same time.
Angie
July 11, 2011 at 6:35 pm
I am voting on behalf of my Daughter Mikelyn. She is 4 months old and was born with Tetralogy of Fallot. She is having a 2nd Open Heart Surgery in August. Bowen has been such an inspiration to me. Thank you for sharing his story with us. We pray for him and your family every night.
Trent & Dena Hamilton
July 11, 2011 at 6:58 pm
Been posting about the grant everyday and retweeting the posts! We are behind this 100% and are encouraging everyone to vote.
I add the CHALLENGE to all who read here…if you have your own blog, write a post about the grant and about Whole Hearts. We did and you are welcome to steal our post, which can be found by clicking on our name! Imagine the number of votes we can get if EVERYONE blogs about this!!!
Voting every day!
The Hamiltons
Maria aka Rockermom
July 11, 2011 at 7:09 pm
Praising God for every little miracle in Bowen and the rest of the Hammitts. Thanks for keeping us updated. Been voting and retweeting, hopefully you’ll win the grant from Pepsi. Sending much love and prayers to the whole family, be blessed!
Janell
July 11, 2011 at 7:22 pm
I’m voting everyday and will continue to spread the word. Let’s do this!
Holly Johnson
July 11, 2011 at 7:23 pm
I’m in!!
Riete
July 11, 2011 at 7:35 pm
I’m so glad to read Bowen is still doing fine! Yay for the carrots, LOL!
)
I’m voting and spreading the news …
Jean
July 11, 2011 at 9:58 pm
Bowen is so cute in that picture.
I’ve been voting and just posted this blog post to my Facebook page. Go Whole Hearts!
Amy D.
July 11, 2011 at 11:00 pm
HE IS GETTING SOOOO BIG!!! (and cuter by the day!!)
Hey, since I tweeted about it earlier today, Ethan has been eating! He ate half of a turkey and cheese sandwich! Woo hoo! I honestly think that if100% of his daily needs could be found in a strawberry, he would be one happy camper! (he’s a fruit eater)
I’ve been voting via text. I will admit I’ve not been getting the word out like I usually do about things like this. I’m not able to be on my computer as much these days but I promise to do better!
Love you guys (and your smurfiliciously cute son!
)
Amy
Christina Falub
July 11, 2011 at 11:49 pm
Matt, I will definitely help spread the word! I know the Lord has something great in store for this foundation and for your family! I will blog about this foundation on my website and that will help get the word out there for sure. I am completely supportive of this foundation! Bowen is a living miracle and my heart goes out to him and to others who are also undergoing the same condition. Grace and peace be with you all!
debbie
July 12, 2011 at 4:12 am
im not sure exactly what is wrong with bowens heart but have grandaughter who is pershing as we speak in boston childrens she is two and her name is chloe mae delaney but i would like to help with a vote just tell me how
Jennifer K.
July 12, 2011 at 2:25 pm
Wow! Debbie – I will be praying for your little Chloe…
Michelle Best
July 12, 2011 at 7:58 am
The organization (Cure JM) representing my son’s disease won this time last year by combining with other organizations also in the running but under different categories. In our case, my son has a rare disease so they found other similar, health related organizations and encouraged everyone to vote for both…three times per day (texting, through Facebook and directly through the Pepsi Refresh page (and by the way, there’s an app for that)). Just a thought for you. I’ve texted in my vote and am launching the app now.
Carla Bogan
July 12, 2011 at 8:36 am
Matt & Sarah, My son Jeremy is 32 yrs old and is the pioneer of the procedures Bowen has had. Only back then they did it in one step, the fontane. We both love hearing of Bowen’s life as well as the rest of your family and love your music. Jeremy is working on his story, and he has had quite a journey. He is still with us and he is a fighter.
I want to volunteer to help this foundation. Please contact me. i can do anything you need done. I just live in Millbury and our kids have the same cardiologist.
I look forward to hearing from you.
Joan Cogswell
July 17, 2011 at 1:31 pm
God bless Bowen each and every day. Prayer is powerful. I will start voting today and spread the word.
Carla, I read your reply to Bowens’ Mommy and Daddy. My nephew was born with HLHS and is now 9 years old. Seems his Mom is so stressed. Never sleeps a whole night in fear of him passing away in his sleep all alone. During the day, a phone ringing makes her jump.
His big sister was accepted at a college in western PA this spring but declined because ‘if anything happens to Joshua I won’t be able to get home in time to be with him when he needs me’.
We have been blessed by this little boy. And he is doing very well. HAs done his time in Michigan. He has had an impact on everyone in our family and in his school and community. It warms my heart to hear your son is 32 years old. God is good.
I will pray for your son and all the children with congenital heart probems and will submit my votes for the grant for Bowen. And I will spread the word getting all our family and friends to vote.
Lizzie Vincent
July 12, 2011 at 8:38 am
We’re in! Been voting and will continue to do so! It’s going up on my facebook page so all my friends will vote!
Your family remains in our prayers. Praying for Whole Hearts Foundation too…
Love and Prayers,
The Vincent Family
Carla Bogan
July 12, 2011 at 8:45 am
We use to call Jeremy one of the smurfs! We laughed when the new smurfs movie just came out. Laughter is good medicine even in sad times.
kerrie adams
July 12, 2011 at 8:50 am
So happy to hear about answered prayers for Bowen!! He is such a fighter and is surrounded by so much love – not only from his family but from all of us!
Thank you for including us on this journey with you and your family.
I will continue those prayers and will be “clicking” daily for Whole Hearts Foundation.
Claudia
July 12, 2011 at 9:54 am
VOTING AND SHARING!!! This is so cool Matt and Sarah!
Kristen
July 12, 2011 at 10:51 am
I’m in too. I’ve been voting since I saw the post on the Bowen’s Heart fb page, and now I posted it on my fb page. So glad to hear about answered prayers for Bowen’s eating. Love those little teeth! Will continue to pray.
Mary Powers
July 12, 2011 at 11:05 am
Ok, Matt… I thought I was somewhat tech savvy, but I’m at a loss for how to put your little voting widget on my profile page. I did a posting on my CHD group with links to all pertinent info, but banners and voting widgets… ??? I tried to “copy source” of your voting widget, but it did not reproduce the same. Any clue where, or how, I can download one?
Rejoicing with you on the small victories! Go Bowen!!!
Thanks!
Mary
P.S – If we keep this going, you’ll be skyrocketing to the top! You were #48, or something, when I logged in.
Jennifer K.
July 12, 2011 at 2:23 pm
I just logged in and they were #40..yay!! We’re getting there!
Mary Powers
July 12, 2011 at 5:45 pm
FINALLY got it embedded! What a process! Apparently, you can’t be logged into Pepsi at the same time. It eliminates the “embed” feature and leaves only the “share” buttons. Go figure!
Moved up to 39! Need to buy some Pepsi products this payday! LOL!
God bless you and yours!
See you at the Akron Baptist Temple in October!
~Mary
Lisa Bullis
July 12, 2011 at 11:35 am
I have been voting via text messaging every day since I heard about this. I will start going to the Pepsi page and voting there also!
Sara Schritter
July 12, 2011 at 11:47 am
I was so blessed to be touched by your story at Nightvision Colorado in Olathe, CO on July 9th. I am the woman who showed you a picture of my 11 year old son, Bronson, who had heart surgery at 5 months old for Tetralogy of Fallot in line while we were getting your autograph at the concert. I am now going to follow your family’s blog and continue to pray for you and your wife….but especially for Bowen. May God’s arms wrap around him and protect him all of his days. I believe that prayer is so powerful and God has protected my son through every trial with his condition. I voted and will keep voting. There needs to be continued support for research and repair for Congential Heart defects.
Bronson has his annual check-up on Monday, July 25th. Prayers needed that it is a good appointment. We look to every year for a good check-up and to push back the next surgery date further and further into his adult years.
God Bless!
Sara
Starla Barnhill
July 12, 2011 at 12:40 pm
I have embedded Whole Heart Foundation into my website, to encourage everyone to vote every day. I have Bowen and your family on the prayer list. You are an inspiration to all of us who have dealt with, pain, in some form or another. God Bless you Matt & Sarah, for you are truly God’s children. godshealing24 (twitter)
Michele
July 12, 2011 at 1:54 pm
Voting away! And I will everyday and will ask all my friends and family. SO HAPPY to hear that Bowen is better. He crosses my mind everyday. Will continue to pray that he gains weight. What a precious pic of him. Please send the whole family my love! You guys are awesome!
Irene Moulton
July 12, 2011 at 2:00 pm
Been voting and put on my facebook to let others know. Such a worthy cause. Please pray for isabelle she goes july 13th to get her electrocardiogram to see if her valve needs to be replaced again. She and Bowen were in the hospital together until Bowen got out 3 weeks before her, Chris & Heather Moulton’s daughter.
Julia McAllister
July 12, 2011 at 2:01 pm
Voted and shared
Our HLHS warrior is due in 9 short weeks- woohoo!
So glad his eating has improved, even a little bit better is so much more relieving! When our first son had so much troubles the only thing we could get him to eat was avocado squished with cream cheese- I thought he would turn green! But avocado is a superfood for babies- so we were happy. His ‘guacamole’ baby food- hehe.
I’m glad Bowen could get into the holiday spirit
I’ve heard that liquid intake can change color- as well as elevation, so it could be his ‘norm’ to be a little more colorful. After the Fontan procedure is when all the parents seem to be most surprised at the improved color of their little ones- I wonder if our Gabe will be a blueberry too!
Bless you!
Julia and Nick
Jennifer K.
July 12, 2011 at 2:22 pm
I have been voting everyday!! I have several Pepsi bottles with Power Vote caps – now I’m glad I haven’t used them!! This idea will be getting numerous power votes from me!!
The Lavina Family
July 12, 2011 at 6:21 pm
Voting! Praying! Voting! Praying! Voting! Praying! Voting! Praying! Voting! Praying!
THANK YOU FOR LETTING US HELP!!!! We’ve sent out a mass email to wrangle more support too!
LOVE Bowen’s picture! Bowen’s bright smiling face glorifies HIS Name! What an absolute treasure!
With love,
Dana, Carmelo, Claudia and Ethan
susie michaud
July 12, 2011 at 6:37 pm
Yay, the internet is working!! Glad to hear that Bowen is eating better. Keep it up little baby guy!! I’ve been voting for you guys and it’s great to see the improvement on the number.Woo Hoo! Have fun being home for awhile and enjoying some quality time with your family.
beth beck
July 12, 2011 at 8:19 pm
God couldn’t have given Bowen and his llittle broken heart to a better Mom and Dad. He knew you both had the strength to bear up, and the bandwidth to share his story. You’re bringing us all into battle and spreading hope to those already on the battlefield, weary and wounded. I’m so thankful for this blog and your gift for communicating. Thanks for letting us come along side you.
BTW, that little Bowen is a poster child for cuteness supreme. You are greatly blessed!!!
Voting and sharing….
Marie Gaskill
July 12, 2011 at 10:57 pm
Soooo glad Bowen is doing ok. Your prayers and thoughts are helping me get through a trying time since my granddaughter Grace has 7 heart defects, and is facing her 10th surgery at the age of 2. It will be a Fontan procedure. Grace and Bowen are at the very top of my prayer list. He is as handsome as she is beautiful. I will vote everyday, And I thank God for you Matt and Sarah.
~Marie
Karin Erskine
July 13, 2011 at 8:21 am
When i heard this story it gave me chills. I have a three year old son that has hypoplastic right. He has had two open heart surgerys and will have the third on the 25. it will be the fontan procedure. I love hearing his story knowing that someone else is going through what im going through.
Heather Carter
July 13, 2011 at 9:24 am
I’m sure you’ve thought of every possibility concerning why Bowen’s skin is a funny color. but I wonder if the weather has anything to do with it? If he is hot or cold maybe his body is just showing signs of trying to adjust that? Having thin skin and little fat may make it more obvious than on a chunky baby. just my thought. take care!!
Miki Hill
July 13, 2011 at 9:45 am
My yougest daughter was born with HLHS 9 years ago. Since that time, she has had three open heart surgeries. The last one being a heart transplant in Houston, Texas. She is such a blessing from God. I know that God will bless foundation. I will keep Bowen, your family, and this foundation in my prayers.
Alyssa
July 13, 2011 at 3:10 pm
WOW! From 58 to 35….that’s AMAZING!
In His Grip,
Alyssa
Tammi T. (a mom of an HLHS boy)
July 13, 2011 at 3:21 pm
I’m one of the few that isn’t on FB
but I signed up with Pepsi so I could vote! I also sent out a mass email to most of the people in my address book asking them to vote, too. Hopefully, I got some daily voters for you with that. I’ll be there voting daily!
Glad to hear the answer to prayer with the eating. God is good all the time and all the time, God is good!!! Like I said before, Daniel’s went away after the Fontan and his doctors didn’t seem too concerned about it when it occurred prior to his Fontan.
We’re still praying though.
In our hearts <3 <3 <3 and in His hands
Jenn
July 13, 2011 at 10:32 pm
This may be a dumb question, but how do we find the widget code? Thanks!
Dea Webb
July 14, 2011 at 12:03 am
I have been digging through the recycling bins at my work to find Pepsi Bottles so I can power vote!!! I work at an engineering company, so I’ve been getting some stares for my not-so-professional behavior!! I don’t care though. It’s WORTH IT!!!
Go Bowen Go. My 2 year old son prays for you every night.
Katie
July 14, 2011 at 11:54 am
Up to 33rd… yeah!! Keep it coming!!
Eric
July 14, 2011 at 12:12 pm
I just now realized this was a competition… I will gladly share with everyone that I can and text/vote on fb every day
You guys are awesome, and I hope God continues to bless your ministry.
Gwen Langford
July 14, 2011 at 12:16 pm
I have been and will continue to vote for this foundation. I know that the money would be used to help those in need and God will be given the glory. I have been touched so much by following your lives since Bowen’s birth. God is using your family to touch so many people, by Bowen’s Heart & his story, your faith in God, staying strong and Matt’s amazing music. I pray for you all and will continue to vote every day by text and computer! God Bless you and may Bowen continue to get stronger and better each day.
Jeffrey Hill
July 14, 2011 at 12:47 pm
Our son Joshua was born with transposition of the greater vessels in 2004 and had open heart 6 days after he was born to fix it. He developed multiple complications after he was born and had multiple surgeries and procedures. He was hospitalized for 8 months. In 2007 he started walking and this year he started talking. He also was able to have his g-tube removed last summer. God is really working in his life
and we pray that God would work in Bowen’s life and increase your faith. It is great to see someone setting up a foundation to help families with children with heart defects. We will pray for your family nightly.
In christ. Jeff and Barbara Hill
Allyson from OK
July 14, 2011 at 12:50 pm
My BFF’s niece also has HLHS. See her information at http://emmajanae.blogspot.com/.
Julia
July 14, 2011 at 2:55 pm
Woohoo- #29!
Lauren Kirby
July 14, 2011 at 6:36 pm
Hey Hammitt family!
I’ve been voting and power voting every day & calling my family to steal their power vote codes from the inside of their pepsi!
Matt, I used to volunteer at St Johns Lutheran with Tom Schaeffer and again at St Pauls, you guys used to play for us. My dad and I did the sound there and we just love you guys so much & have been praying for you ever since & especially now. Its amazing to see where Gods moving through the years. much love & prayers!
Kristin Leclaire
July 14, 2011 at 10:24 pm
Thank you for this–I will be voting each day.
Also, I loved the comment about the red, white, and blue child; our Sam flashes through these three colors just about every day.
Denise Moen
July 15, 2011 at 10:33 am
We will be voting for your Foundation. Our grandson , Isaac Matthew , has been in St. Joseph’s Children’s Hospital in Tampa, FL now for 9 months. He has the same thing as Bowen and has had two open heart surgeries. He also has a trach, ventilator, and feeding tube. He has been a miracle, however, his sister ( age 3 and brother , age 7) would love to have him come home. He also saved his brother’s life since brother and sister had their hearts checked out and brother had an undetected CHD since birth. At one time, we had two in the ICU. God has been faithful and know your Foundation may be able to help many. God bless you and your family.
Melissa
July 16, 2011 at 4:08 pm
Keeping Bowen and your family in my prayers! He is such a cute little boy! I’ve been sharing your story with my co-workers.
Voting daily, by text and online! Been buying lots of Pepsi for the power voting!
I’ve even been asking people at work to please give me their codes.
God Bless you and your beautiful family!
Melissa
gary sturrock
July 17, 2011 at 12:28 am
we serve an awsome GOD!! M y daughter got saved last night at church camp!!
Alyssa
July 17, 2011 at 1:27 pm
Praise the Lord!!!
Connie Toole
July 18, 2011 at 9:41 am
We’re in !! Having a granddaughter with, HLHS, this is very close to my heart, and we need alot more reserch for these children so they can have a good quality of life with the Lords help and his giving the medical field the knowledge, A-men !! My granddaughter is on http://www.carepages.com, EmersonBanksMay. Praying for continued improvement for Bowen !!
Connie Toole
July 18, 2011 at 9:48 am
Hope this is o.k., just saw the note about little “Issac Matthew” Would love to follow him and continue to pray for him and his family. Do you have a site for him ? My granddaughter if you didn’t see my note to Bowen , also has HLHS, her site is http://www.carepages.com, EmersonBanksMay. Praying for you and your family !! Just prayed that good reports woild come today !! Thank you Lord !!
Pam Schooler
July 18, 2011 at 5:56 pm
I hope your grandaughter Emerson is doing OK. Last I heard she had her 3rd surgery and had difficulty with fluid in her lungs. Hopefully that has cleared up by now, but I will pray for her. Thanks for keeping us updated.
janelle
July 18, 2011 at 4:42 pm
Praying for Bowen and voting too! Our son is 4 months old and just had his 2nd open heart surgery. Ryelan(our son) has a ng tube. We are hoping that we will not need to use the tube much longer. It was so therapeutic to read your blogs……..I love the picture with the syringes~ no one really understands until you are doing it every day………THanks so much, you have no idea how much you have helped my husband and I.
Janelle and Nathan Swartz
TSmith
July 18, 2011 at 10:09 pm
Praying for Bowen. Each set of pictures shows just how much he has progressed. With you being so close you can’t see until you go on the road and then come back and say that “he didn’t do that before I left, even if it is just for 3-4 days.”
I cannot wait until you come to Destin Fl. We have been staking out the best location for seating all summer and the weather has cooperated each Sunday. I hope you are able to bring the whole family.
t
lisa carlin
July 19, 2011 at 6:52 am
bowen looks so big! eating is always an issue with heart babes. dylan is three now but still more like a 1yr old. he’s going for his fontan on august 22nd. we are hopeful that this will help him move along more with an oxygen increase afterward. he sats at 82% right now. his eating is slowly improving but still not drinking alot of liquids. I wonder sometimes if he will ever really catch up to his age. still,, I know we are blessed that he’s doing so well and I am grateful for that. he’s a happy, playful little guy! enjoy the rest of your summer with your beautiful family and thanks for all the awareness you are bringing to the world on behalf of all the little heart babies out there
Jennifer K.
July 20, 2011 at 10:48 am
I’m curious how it’s still at #27 ? I’m hoping it’s just my computer not loading properly – it must take a lot of votes to move it up a slot!! I’ve been voting daily and I’ve been power voting too..10 to 25 each time…I’m trying!!
Ruth
July 20, 2011 at 4:03 pm
I’m in too!
Lot’s of love and prayers from Florida.
<3 Ruth
Deb Kasun (HLHS mom to Joshua)
July 21, 2011 at 4:14 pm
Hi Matt,
I am voting because my son was not one of the “lucky” ones (although I know luck has nothing to do with it). Joshua was born with HLHS in 2003 and went home with Jesus on July 1, 2005 while awaiting transplant. There were not many resources for families. I know there is a great need for this and I pray God will bless your ministry richly, just as we were blessed by the time we shared with our baby boy.
http://www.caringbridge.org/wi/joshuak/
Rebecca Sams
July 23, 2011 at 1:30 pm
I voted for Whole Hearts Foundation!! I love you guys, and I’ll be praying for Bowen!
Kailia Mize
July 27, 2011 at 3:08 am
I cannot begin to imagine having a baby with a heart condition; nor can I imagine knowing about his condition while awaiting his arrival. Bowen is your miracle! And I’d like to introduce you to mine. His name is Alexander, and we did not know the blessing of God on him until the day he was born. On a cold December morning almost 6 years ago, Alexander made his entrance into the world. I can only remember the Nurse saying “we’ve got birthmark!” And boy howdy, does he have a birthmark. The right side of his face, ear, neck and half way down his back. That night as I struggled with my pain and anger with God, a wisper in my heart reminded me that Alex was perfect in God’s eyes. And I would just have to trust and have faith in His provision. The dr’s gave Alex 6 months to live…and now he is getting ready for his 6th birthday! His first surgery was when he was 4 months old. His 17th surgery is just a month away. I can only say that Alex has taught us to laugh through the tears, smile through the pain and dance in the rain.
Every day is a miracle! Every moment special! While his can convert to melanoma, or damage his spinal cord or brain stem, I know how hard it is to watch as they take your precious Boy to surgery! May God Bless you and your family! And I am voting for you!!!!
Dana Hartman
July 29, 2011 at 8:45 am
Matt and Sarah, I heard about your story on KLove…I am a peds nurse practitioner and I work with HLHS patients, specifically during the interstage period between Norwood and Glenn. Will be praying for you all, Bowen is adorable!! There is one organization that we have here in Indiana and there are more in other states called “Mended Little Hearts”. Didn’t know if you had heard about it, but many of our families find it a helpful group. Weight gain and eating is such an issue with these babies, glad to see he is eating carrots!! Yummmmm:) Voted for your idea, glad to see you putting your efforts into supporting other families, it is so very important!!
Todd
July 30, 2011 at 1:58 am
Matt,
We’re praying for you, Sarah, and Bowen. Admittedly, I just recently discovered your music when I heard a interview with you on K-LOVE a couple of weeks ago about Bowen’s heart condition and how you wrote “All of Me” for him. Having a 4-year son with HLHS, I was immediately drawn in and shocked to hear about someone else who is going through what I, my wife, and son, Willem, have gone through. There have been tough times, but Willem’s still with us and going strong! It’s great to hear you in good spirits. It’s an indication of your faith and positive outlook, which will be a great influence on Bowen as he grows up. From the moment we first found out about Willem’s heart condition, Jesus has made it clear that He’s looking after him. And He’s looking after Bowen as well. WIllem (whose middle name is Samuel, meaning “God listens”) has completed all 3 required surgeries and has been doing really well since (including his color being much better). You’re all in our prayers now.
Oh, and I’m loving “All of Me”, as well as your other two singles. And I’m really loving the latest Santus Real album.
God bless!
Todd
margaret grace tungul
September 23, 2011 at 12:46 am
hi good day!! im from philippines… my son is 3 years old and he also have congenital heart desease.. how can i ask for help to all of you? i have no idea.. im not good in computer..how can i ask help my sons need open heart surgery. but we dont have money. coz im a single mother.
im interested to the whole heart foundation..im wishing and praying that you can pay attention to my son
thaNK YOU SO MUCH
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scott o'neal
December 23, 2011 at 4:55 pm
Hey Matt, I just found out about your baby having hlhs. January 5th my son will be born. His name is Matthew Scott o’neal. He also has hlhs and will have to have surgery. Had never even heard of this before now. Would ask that you pray for us and was wondering if you could tell us what we could expect and maybe some advice on things we need to know. Thank you.
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