I’ve been out of town for two days, so I asked Sarah to send another update for you. Here’s a picture she sent me this morning and what she wrote last night.
Hello there. We had yet another big day. I met with our neurologists and they gave me some of the results for the MRI. They said that Bowen had suffered a stroke at some point over the last week and that it was the cause of his seizers. They checked his heart, liver and picc line for any clots that were coming loose and they didn’t find any. I’m wondering if his extremely low sugars could have caused this. They say it doesn’t look like something that’s related to a sugar stroke, but couldn’t rule it out. Please pray that someone would figure this sugar problem out. I don’t think anyone quite knows what to make of it. As long as Bowen has food in his tummy at all times, he stays balanced. As soon as we switch to feeding him every two hours, he drops really low in between. They keep upping his dose of medication in hopes that it will work, but we’re closing in on the maximum dose they can give him. I hope the next few days give us some more answers. The good news is that Bowen looks and acts great. He’s a little loopy because of his anti-seizer drug, but he responds to voices, has good eye contact and follows objects well. The neurologists say we probably will not see any evidence of the stroke other than the seizers. I’m getting weary. My brain does not seem to have room for anything else. Everyday seems to reveall a new obstacle and a new thing to wrap my head around. A friend told us she prays that we would learn to “hold Bowen loosely.” So I am learning to hold Bowen loosely, but love him tightly. This is a very difficult task. I didn’t realize how tightly I have held the people I love. In the past, loving with all my heart meant holding on very tight. Now I am having to do it a different way. Well I’m very tired and need to sleep so I can take on tomorrow. I hope you are all doing well:)
“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to things that are unseen…” 2 Corinthians 4:16-18