Here’s the latest on Bowen. Both his blood and urine cultures came back negative so the doctors are unable to identify whether he’s fighting an infection or something else. However, his symptoms made it clear that he’s fighting something, and we’re incredibly grateful that it appears to be nothing severe. They’ve put him on antibiotics which have driven his white blood count down and he’s looking better every day. We’re anticipating that we’ll get home in the next couple of weeks. They’ve actually told us when they think we’re leaving, but I’m not going to make the mistake of announcing it:). We’ll just surprise everyone when it’s time.
We received another piece of good news from the doctors this week. Bowen’s genetic testing for Hyperinsulinism (HI) came back negative. This means that he probably won’t need to have his pancreas removed.
Thanks for your continued thoughts, prayers, and comments; they are a constant encouragement to us. I won’t lie, it’s getting increasingly hard to be away from home. We can also sense that it’s getting harder for our girls. Sometimes they cry a lot and other days they act out aggressively because of the heightened emotions of this experience. It’s very difficult for me to balance tenderness and discipline as a father. I have practiced more patience and prayed more prayers than any other time in my life. I pray that this journey we’ve been on with Bowen will continue to get easier, but there is no guarantee of that in this life.
I read a book last night that someone sent me called “Wrestling With An Angel” by Greg Lucas. It’s “a story of love, disability, and the lessons of grace”. I loved the following paragraphs so much that I wanted to share them with you.
“I hear religious minded people say all the time with good intentions. ‘God will never place a burden on you so heavy that you cannot possibly carry it.’
My experience is that God will place a burden on you so heavy that you cannot possibly carry it alone. He will break your back and your will. He will buckle your legs until you fall flat beneath the crushing weight of your load. All the while He will walk beside you waiting for you to come to the point where you must depend on Him.
‘My power is made perfect in your weakness,’ He says, as we strain under our burden.
Whatever the burden, it might indeed get worse, but know this-God is faithful. And while we change and get old, He does not. When we get weaker, He remains strong. And in our weakness and humility, He offers us true, lasting, transforming, and undeserved grace.”