Bowen is SIX!

14192074_10154564299305407_206629157661462649_nBOWEN  IS  6!!

This past week, on September 9, Bowen Matthew Hammitt turned 6 years old! S-I-X!!! Let me shout it again, BOWEN IS 6!!!! Thank you Jesus for 6 years with my Mr. Bowen, my sweet little man.

Leading up to this week I didn’t anticipate being so emotional, yet here I am with tears in my eyes in deep reflection. Every minute, hour, day, week, month, and year with all children is a gift but, when you have watched your child and other children around you dying your appreciation for the milestones are more intense. Mommies to sick kids always have on our minds the reality that tomorrow is simply not promised. We must celebrate and enjoy now. As always, my deepest sympathy to the mommies/families who have had to say goodbye for now. Also my heart goes out to the mommies in the middle of the nightmare or with less optimal outcomes.

Bowen and Matthew flew up north on Bowens actual birthday to Michigan from Nashville to do a fundraiser called Caden’s Full Throttle Event with the University of Michigan. Caden was a little boy who went to heaven at the age of 11 after a life long battle with heart disease and cancer. He was born with HLHS, transplanted at 6 weeks, diagnosed with transplant cancer at age 7, and at age 10 he was in need of a 2nd heart and went to heaven before it became available. Please pray for this family and their broken hearts. They will be preforming 3 songs together. What a wonderful way to celebrate his 6th birthday. Not in my wildest dreams did I imagine 6 years ago that my half hearted wonder would be doing something like this. He is thriving!

For those of you interested in his medical status, his O2 is 85/87(but prob drops high 60s at times). He is a second stage repair (hemi-Fontan) by choice. He is ready too move forward, but we have followed the advice of a few Drs throughout the country with the opinion that it is ok to wait it out awhile. He only takes aspirin. He will potentially need at least one more surgery called the Fontan at some point in the near future. Prognosis seems to remain the same. They can’t tell us much but 30% of kids don’t make it to 5 and most won’t make it passed early adulthood. Although, from my vantage point it seems things are getting much more optimistic for single ventricles. There are many adults thriving. There are also many advancements happening and we are feeling hopeful. It takes medicine a long time to change stats, especially in the CHD world. Only time will tell. For now we trust God and His will for Bowens life.

This week is also the anniversary of Bowens cardiac arrest. We always like to reflect on this date because it is such a testimony. Six years ago on September 14 at 2:13 am, Bowens heart stopped beating and received over an hour of compressions and then was placed onto ECMO. There are no words to express out gratefulness to God that Bowen pulled through that event and is here with us enjoying a full life.

As always thank you for your love and support to our family. It truly means so much to us. When you pray for our family always remember to pray for the whole congenital heart community. We need it. May God bless you all this week.

PS: We have another celebration this weekend so I will update this post with a few new pics.

 

img_3886

Birthday Boy.

 

img_3880

Buddies.

 

img_3902

The cousins were in town to celebrate!

 

img_3992

Grandma Gail and Papa Gary

 

fullsizerender-43

My mom and Bowen have birthdays 3 days apart:)

 

fullsizerender-42

Matthew and Bowen at the event.

 

14364856_10154579207425407_2497754898966347650_n

September 14, 2016

 

14344798_10154579207315407_3739434650089577002_n

September 14, 2010

 

 

Happy Birthday Bowen!

He looks so peaceful when he sleeps. Sometimes we just sit and look at his little white legs and blue toes poking through those brightly colored little boy briefs, and …

Read More

Good Reports

In our last post I mentioned that we were going to take Bowen for his six month check-up this week. On Monday we made the familiar drive up 23 North …

Read More

Easter Weekend

I hope you all had a wonderful Easter weekend. The band and I spent last week in Australia, but we were fortunate enough to make it home just in time …

Read More

A Post From Aunt Hannah

The other day Sarah’s sister, Hannah, sent me something she wrote on Valentine’s Day.  Just like many of you, she’s itching to see an update on Bowen’s Heart.  He’s been …

Read More

Meet Mr. Lewis

Our fourth and, Lord willing, final baby, Lewis Will-Edmond, has arrived! And he’s settling into our home quite perfectly. It may be too early to tell, but it doesn’t seem …

Read More

Our Birthday Pirate

Another milestone has come and gone in our little man’s life.  It’s so hard to believe that Mr. Bowen is already two years old, and more precious than we could …

Read More